US Edition Newsletter
March 2018
With your support since December 2016 – we have raised
through CAF America.
Post deduction of administrative and fund charges by CAFA
of the funds were used towards the support of
11 little hearts
in need
give now To read their stories under Life Project - Click Here
Our Heroic Hearts
Seventeen years is how long Lalmati and Mohanlal had waited for a child to be born to them. Their happiness knew no bounds when Lalmati’s pregnancy was confirmed. They couldn’t wait to meet their little bundle of joy, and it seems, neither could he, for their little son, born at 28 weeks, was born 12 weeks premature.
The premature birth itself was a terrifying ordeal for the family, with their tiny baby weighing only a kilogram, and it meant constant vigilance by doctors in the intensive care unit, after delivery. He was being treated in a level III intensive care unit for the next three weeks. Shiv, as he was named by his parents, continued to lose weight despite tube feeding and the best of care afforded by the doctors. He was finally diagnosed as having a heart disorder known as Patent Ductus Arteriosus (PDA).
PDA occurs when there is an unwanted connection between the two major blood vessels of the heart; the aorta, and the pulmonary artery. Due to this connection, oxygenated blood from the aorta is shunted into the pulmonary artery, depriving the body of oxygen rich blood.
Shiv’s father, Mohanlal, is an immigrant labourer from the North of India working in a small private company, he was no longer in a position to afford NICU care at the government hospital, neither could he hope to provide tertiary pediatric care whose expertise is mostly limited to private hospitals with his limited resources, for his son.
Shiv’s weight had further dropped to 900 grams, he was dependent on oxygen provided externally, and was being fed via a tube inserted into his stomach via his nostrils. None of the medicines recommended for treating PDA had worked, and the only way forward now seemed to be a surgical procedure. The need for emergency healthcare was discussed with us; as we work towards heart treatment for underprivileged children, and immediate financial approvals were given, after which the baby was instantaneously shifted to Jupiter Hospital in Thane.
The baby was admitted to the NICU under Dr Srinivasan L. who specialises in cardiac procedures for such small babies. He has to his credit more than 1200 successful cardiac catheter interventions. A team of neonatal specialists were put together with Dr Paramanand Andankar heading a team of neonatologists and Dr 3Dilip Chavan and Maheshrao Thorat heading the team of pediatric cardiac anesthesia.
The PDA device closure was performed on 28th February 2018. In this procedure, the heart defect is closed using a highly specialized implant called the PDA device, which is the best process for surgery on such small children. This implant is inserted via a venous port accessed in the baby’s thighs. The entire operation was performed with only a needle inserted into the body and without having to cut open the chest. The advantage of this procedure is the faster recovery time and least invasion. Shiv was taken off ventilator within next 18 hours and feeds were introduced immediately after the procedure. He is now stable and at present recovering in the NICU and is expected to do well.
What makes this case unique is that, at 900 grams, Shiv happens to be the smallest baby in India to undergo PDA device closure. Thus today, not only is he a miracle for his parents, but also for the medical fraternity in the country. Genesis Foundation, is blessed to have been a part of his record recovery and helping this littlest of hearts find its beat in the world.
As for Shiv’s parents, this miracle that they’ve been waiting seventeen years for, they’re just glad they get to finally take him home.
Baby of Seenath
Seenath’s baby let out her first cry on 1st February 2018 at a local hospital called P K Das Hospital, Palakkad, a city in Kerala. Very soon after she was born, the doctors noticed that the baby was breathless, so it was critical to keep the baby in ICU until a more detailed evaluation could be done.
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Sana, now one years old - was born on 12th September 2016 in her hometown located in Tamil Nadu. Very early on, her parents realized that their daughter was not meeting milestones with her weight gain. Both parents were naturally alarmed and took her to a local pediatrician and a shocking discovery was made – Sana was suffering from a congenital heart defect.
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Baby of Shijina
Baby of Shijina was born to couple Shijina and Saju who live in Kannur District in Kerala. When their little baby was born the doctors observed that she had a rapid heartbeat accompanied with alarming signs of breathlessness. They immediately recommended that the parents take their then, two-week-old baby to Amrita Institute of Medical Sciences in Kochi for a more detailed evaluation.
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Priya Prajapati
Rita and Prabhu have three children – the eldest one is twelve-year-old, beautiful Priya Prajapati. Three years ago, Priya developed a high fever and was rushed to a local pediatrician for a diagnosis. The doctor prescribed medicines and noticed that she was showing difficulty in breathing. He recommended that Rita and Prabhu take her to consult with a cardiologist.
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As a baby pushes its way out into this world, and takes that first tentative cry, a million dreams take birth in the hearts of the parents. Small dreams of teaching their child how to throw a ball, of the first day of school, or perhaps of watching him/her tie their own shoelaces for the first time. But what if the only dream you have for your child is that they are able to just live to see another day?
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Over 1450+ little lives saved
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