The Story of Vedarsh

Our Foundation specialises in CHD treatment in India and although our office is based in Gurgaon, Haryana, Genesis Foundation has it’s reach all over India. But due to the unfortunate distance, it becomes hard for us to visit all the children. Regardless, we make it a point to contact these families over the phone and find out about their status. There was one such case from Tamil Nadu. Since, I am from South India and can passably speak and understand Tamil, I was able to further understand this case. Mr R Srivatsan, the Program Manager of Pediatric Cardiology at Genesis Foundation, helped me interview the mother of the child.

And this is his story.

Born in Thiruvarur, Tamil Nadu, to N. Kaliyaperumal and M. Umamaheshwari, is little K. Vedarsh. He is the second child, the first being his 2-and-a-half-year-old older brother. He was born on 21st September 2019, a day that was very special for his parents. They were finally ready to lead a new life with the newest addition to their family after a long wait. Their son now had a companion, and their family was now complete. Everything was going well until about a month and a half after Vedarsh’ birth , his mother started noticing that at times he would have difficulty breathing and trouble taking his feed. This only kept getting worse. As his mother was narrating this story on the phone, we could hear the sadness she felt. It was very hard for her to see her child suffer. An infant who doesn’t have the ability to speak and convey what they were feeling, going through immense amount of physical toll. It broke his parents’ heart.

Since Vedarsh’s mother was working as a nurse till before she had her first child, she knew something had to be done immediately to rectify this. When he was about 2 and a half months old, Vedarsh and his parents came to Chennai to get him treated. They visited a Government hospital thereand upon inspectiontheydetected a hole in his heart. They stayed at the hospital for a month where they put him on a ventilator but when they tried to take him off of it, he wasn’t able to be stabilized. Vedarsh’s mother had stayed at ESI Hospital campus for the duration of that month, where her food and stay was taken care of. They recommended his mother to take Vedarsh to Miot Hospital. In Miot Hospital, an echo was conducted. Vedarsh was diagnosed with Severe Coarctation of Aorta, Atrial Septal Defect, Ventricular Septal Defect, and Severe Pulmonary Arterial Hypertension.

The doctors told them that they needed to conduct an Aortic Arch Repair and ASD and VSD Closure. Vedarsh’s father is an electrician and has an income of Rs. 8,465. They had no way of funding this surgery, without which their child was in imminent danger. But since Miot Hospital has a tie-up with our foundation, we were able to find out about Vedarsh’s case and help fund his surgery. On 6th January 2020, Vedarsh was operated and luckily faced no complications. Vedarsh is now doing well and has no trouble taking his feed.

When his mother was telling us about his state now, the relief was evident in her voice. She was overjoyed to know that her child was healthy and safe now. And she was very thankful to our foundation for helping her in a time where the family was helpless. Her child was given another chance at life and this was the best New Year’s gift miracle she could’ve asked for. And this happiness wasn’t just experienced by her; everyone at the foundation feels immense joy that we are involved in the CHD treatment in India for so many children, and we will continue to do so.

– Contributed by Ananya Ravi

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