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kids Supported

Mohammed Ziyan

Mohammed Ziyan is a five month old baby boy from a remote village in the district in Kerala. He was born on 22nd November 2016 with a birth weight of 3.2 kg in Manzoor Hospital, Kasargod. This bundle of joy was the light of his parents lives and they were heartbroken when their baby was noted to have decreased activity on the second day of his life. He was advised an Echo, and the results showed Tetralogy of Fallot (TOF). This condition results in low oxygenation of blood due to it mixing with deoxygenated blood in the left ventricle via the Ventricular Septal Defect (VSD). His parents went to meet Dr Sachin from Sunrise Hospital, Kanhangad for a second opinion. Dr Sachin confirmed the diagnosis and referred them to the Amrita Institute for further management. On 19 April, Dr Krishna Kumar (Pediatric Cardiologist) and Dr Brijesh P K (Surgeon) consulted the child and advised an ICR valve sparing. The boy’s father, Mr Sameer is a Salesman working in a local supermarket in Kasargod and is earning a monthly salary of only Rs 9500. With this income, he could not manage the cost of the surgery and was planning to avail loans to manage the cost. Since Mohammed is their first child, his parents were very concerned about the surgery and his well being. The baby’s mother, Shameema, who is only 21 yrs of age was not in a condition to accept the disease of the baby and was incredibly scared and confused. She only agreed to the operation after the extensive counselling from the surgeon, Dr Brijesh. The child’s surgery was scheduled on 12 May this year and was operated on succesffully. He is doing well and is on a road to recovery alongside his father and now relieved mother.

Midha Sherin

Midha was just three years old when she was diagnosed with a heart disorder called Patent Ductus Arteriosus (PDA) which is a hole between the descending Aorta and Pulmonary Artery. Her parents Abdul Khadeer and Amabi are residents of Kannur in Kerala. Abudul is a welder, and earns Rs 5000 per month and has struggled to put the funds together for his daughter’s surgery. Midha was being treated at Amrita Institute of Medical Sciences, in Kochi and was referred to the Genesis Foundation from there. The funds provided by GF through the Aara Project have helped this young girl undergo a device closure, which has granted her a healthy life.

Asim Antule

Asim Antule, two months old is the second child to Abdulla and Parveen Antule. The family reside in Rathnagiri district, in Maharashtra. A few days after Asim was born he showed signs of difficulty in breathing, as well as feeding and eventually developed pneumonia. Both Abdulla and Parveen consulted a local doctor who prescribed some medication and strongly advised they take their newborn son to Mumbai for further investigation. After this appointment, both parents returned home and were unsure on what their next steps should be. They decided to get in touch with some relatives who stayed in Thane, and then planned out how they could bring Asim to Jupiter Hospital, in Thane for further consultation. It wasn’t long until they travelled to Mumbai for the first time and upon their arrial all initial tests like an echo were conducted. This revealed that Asim was suffering from a heart disorder called Severe Pulmonary Stenosis, which is narrowing of the pulmonary valve. Both parents were counseled together, and told that their son needs to undergo a procedure called a Balloon Pulmonary Valvotomy, where the valve is opened with the help of a balloon. What he was suffering from is a critical illness and has no cure besides surgery. Abdulla was at a loss, as he didn’t know how he was going to afford surgery. He is a welder who earns roughly Rs 4000 per month, so bringing together the funds required were only just a dream. The doctors contacted us at Genesis Foundation for help, and we were dedicated in financially supporting this case through CAFA and giving the parents relief from the stress of worrying about the finances – every child has a chance to live. We believe the lack of funds is no reason for any child to die, so we were honoured to save another beating heart. The procedure was performed successfully and Asim has been discharged in a stable condition.

Roshini

Only 6 years old and the third child to Gajrajand Sunita. They have a large family of five children – three girls and two boys and together live in Uttar Pradesh. She is suffering from a congenital Heart Disorder and had a complex subset of Tetralogy of Fallot (TOF) called Double Outlet Right Ventricle (DORV). In this particular ailment, the aorta originates from the pulmonary artery instead of the left atrium. Resulting to an override of the two main arteries. When Roshini first started showing signs of an illness – her parents unfortunately were oblivious to the severity and did not show her to a doctor. This lead to her saturation levels dropping quite significantly and she started turning blue. A local doctor finally referred them to an NGO called “Pure Hearts” who got in touch with us. Gajraj, is a tailor and earns a salary of Rs 8000 monthly. As one can imagine, with a family of this size it’s close to impossible to manage the house, and the needs of his children and wife. Now, with the financial stress that looms over them as they search for ways to get their daughter treated and live a life of good health. Roshini has been operated, and also discharged in a stable condition all because of your compassion for these children in need, and your belief in us to Save Little Hearts. We have been able to give her a chance to go back to school and continue her life that she has been blessed with. Her parents are relieved and are eternally grateful for the help, we have been able to provide together – sharing our vision to make a difference.

Mahalsa

Three-year-old Mahalsa is the only child of Sruthi and Biju from Kozhikode in Kerala. About a year back she developed pneumonia and her parents took her to a local pediatrician where the doctor found she had irregular heartbeat. The parents were referred to Amrita Institute for further evaluation and management. The echo showed that Mahalsa had a hole in between the upper chambers of the heart – known as an Atrial Septal Defect (ASD). The parents were counselled for surgery. Biju is a carpenter, with a monthly earning of Rs 3000. He could not afford surgery, but with financial intervention from Genesis Foundation Mahalsa has been operated and is doing well.

A Beerendra

A Beerendra, four years old from Chittor in Andhra Pradesh is suffering with a congenital heart disorder. He requires surgical closure of a Ventricular Septal Defect (VSD) as there is also severe left ventricular outflow obstruction. This procedure scheduled at Miot Hospital in Chennai is the only thing that will save him. His father Prabhakar is a tractor driver who earns Rs 4000 per month. The family required financial support to get the prescribed treatment so that Beerendra could live. He has since been operated on and discharged, well on his way to recovery.

Alakananda

Alakananda is a four year old girl from a remote village in Calicut, Kerala. She was born on 7th October 2012 with a birth weight of 2.79 kg. Her mother was delighted when she held her first daughter in her arms but on the 2nd day of her baby’s life she was noted to have murmur and cyanosis and was diagnosed with Congenital Heart Defect - Ebstein's anomaly of tricuspid valve. Her parents were distraught as this was their first child and they did not know what to do. The child was on regular follow up in Calicut Medical College. She was seen by Pediatric Cardiologist (Dr Shine Kumar) and Surgeon (Dr Brijesh P K) from the Amrita Institute during the monthly outreach clinic at Calicut Ashram on January 2017. Alaknanda was later referred to the Amrita Institute for further management. A detailed investigation was done at the Amrita Institute on January 25th 2017 by Dr Shine Kumar who confirmed the diagnosis. During a joint cardiac conference that was conducted on 28 January by the Pediatric Cardiologists and surgeons, they decided to do a Tricuspid Valve repair for the baby. The parents were called and Dr Shine Kumar counselled the family about the need for surgery. Her parents were very worried about the cost of the surgery as Alakananda’s father is a carpenter and earns only Rs 250 daily and that also depends on the availability of work. She is the only child to her parents but still the huge cost of surgery is a burden for the family. The family reached out to the Genesis Foundation and thanks to the financial aid provided by our donors, Alaknanda has been operated on, discharged and is now healthy and doing well.

Kasinath

Kasinath is a five-year old boy from a remote village tucked away in Kerala. He was born on 23rd December, 2011 and was noted to show difficulty in feeding. At first this wasn’t as alarming, but after two weeks he was brought to a local hospital for a diagnosis – where the parents were shocked to understand that their new-born son was suffering from a Congenital Heart Defect. He was brought to Amrita Institute of Medical Sciences, in Kochi for further management. Dr Krishna Kumar consulted the baby and confirmed the diagnosis – a Complete AV Canal Block – Kasinath, was advised an early surgery. However, the father was not financially stable and could not afford the surgery. He is a priest in a temple and earns Rs 4500 per month. In March 2012, Dr Sunil G S did an AV Canal Repair with the help from the Hospital Patient Support System. After the surgery, the child recovered well but when he turned eight months old, his parents noticed some impairment with his hearing ability. He was taken once again to Amrita Institute of Medical Sciences where they confirmed he had loss of hearing and needed a Cochlea Implantation, which costs approximately 18 lakhs. To add to it, Kasinath was diagnosed with right facial nerve palsy as he began to get twitching movements of the eye and mouth for a few seconds. This amount of money is far from imaginable for the parents, there is absolutely no means with which they can get together even close to that amount for the treatment of their son. Currently, the father has spent all their money on various medical expenses, he cannot pay for the treatment to help his son’s hearing. Kasinath’s growth milestones have beens slow – he started walking only at the age of four. He is the eldest child in the family, he has a baby brother who is one years old. Currently, he needs a surgery known as SAM resection (his second cardiac surgery) which costs approximately Rs 2 Lakhs. His father is unable to pay for his son’s treatment this time as he has previous loans to repay – together Genesis Foundation is determined to raise funds to take this financial burden off Kasinath’s family and give him a chance to live a healthy, happy life.

Baby of Rajila

Baby of Rajila, two months old from Kerala is suffering from a heart disorder called Supracardiac Total Anomalous Pulmonary Venous Connection (TAPVC). The baby has been prescribed surgery at Amrita Institute of Medical Sciences in Kochi, which this parents Rajila and Shiju sadly cannot afford. Shiju is a labourer and earns Rs 3000 per month with which he supports his two children and wife.

Deepak Kumar

Deepak Kumar, seven years old from Chennai, is suffering from a heart disorder – an Atrial Septal Defect (ASD) and requires urgent, surgical repair at Miot Hospital, in Chennai. His mother Sathya, is a single mother, as they lost the father a few years ago. She used to work in a leather factory where she earned Rs 6000 per month, she is naturally struggling to make ends meet every day as she has two children to look after. Trying to put together the funds required for surgery, is impossible for her at the moment and needs support. The surgery was supported with the funds raised through CAF America, he has been discharged and is now recovering at home.

Muhammed Musthafa

Two-month old Muhammed Musthafa is the fourth child of Ali Palliparamban and Jausira who live in Malappuram, Kerala. Instead of meeting him and celebrating his arrival, the parents were distressed to see him in the ICU because of his heart condition. The doctor advised an early surgery. Working hard as a daily wager to support his three daughters and wife on meagre earnings of about Rs 55,000 a year, Ali just could not understand what was happening. Accompanied by his wife, he ran from pillar to post, hoping that someone would come to their assistance. Their prayers were answered when they reached Amrita Institute two months later where Dr Krishna Kumar diagnosed Mustafa with Ventricular Septal Defect, a hole between the lower chambers of his heart. The doctor performed the surgery, which we could support financially through donations from Charities Aid Foundation America and Aara Project. Musthafa was discharged when his condition stabilized and has lived a healthy life since.

Nivetha

Six-year-old Nivetha, is the second born child to couple Bharathi and Umapathi who lived in Tirvuvallur district in Tamil Nadu. She goes to school every day, where she attends Class 2, where a routine check was being conducted for the children. The doctor noticed an irregular heartbeat and immediately referred her to a district hospital. Luckily, there are doctors from Miot Hospital, who regular visit here as a part of an outreach program. They did an echo which revealed that Nivetha was suffering from a Congenital Heart Defect. In her case, she had been diagnosed with an Atrial Septal Defect, where there was a hole in between the upper chambers of the heart. Both Bharathi and Umapathi were counseled and requested to bring their daughter to Chennai for an open surgery. As one can naturally imagine, this completely shattered both parents. What made the situation worse was Umapathi was burdened with how he would even afford the surgery. He works hard as a labourer but brings home a humble earning of Rs 6000 per month. Through the donations from Charities Aid Foundation (CAF) America, we were able to support Nivetha’s surgery and ensure that the financial burden was taken off the parents, and most importantly the young girl was given a chance to live with a healthy, happy heart.