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The Story of Baby of Benacir Banu

Baby of Benacir is yet another special case that has come to light at our children’s health care foundation – GENESIS FOUNDATION. Mohammed Pahyas and Benacir Banu have been married for five years and always promised each other that whatever life throws at them, they will not be disheartened and fight on together as a team. It hasn’t been easy living a life from hand to mouth, but they have never let it weaken their spirits.
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Kids Supported

Kasinath

Kasinath is a five-year old boy from a remote village tucked away in Kerala. He was born on 23rd December, 2011 and was noted to show difficulty in feeding. At first this wasn’t as alarming, but after two weeks he was brought to a local hospital for a diagnosis – where the parents were shocked to understand that their new-born son was suffering from a Congenital Heart Defect. He was brought to Amrita Institute of Medical Sciences, in Kochi for further management. Dr Krishna Kumar consulted the baby and confirmed the diagnosis – a Complete AV Canal Block – Kasinath, was advised an early surgery. However, the father was not financially stable and could not afford the surgery. He is a priest in a temple and earns Rs 4500 per month. In March 2012, Dr Sunil G S did an AV Canal Repair with the help from the Hospital Patient Support System. After the surgery, the child recovered well but when he turned eight months old, his parents noticed some impairment with his hearing ability. He was taken once again to Amrita Institute of Medical Sciences where they confirmed he had loss of hearing and needed a Cochlea Implantation, which costs approximately 18 lakhs. To add to it, Kasinath was diagnosed with right facial nerve palsy as he began to get twitching movements of the eye and mouth for a few seconds. This amount of money is far from imaginable for the parents, there is absolutely no means with which they can get together even close to that amount for the treatment of their son. Currently, the father has spent all their money on various medical expenses, he cannot pay for the treatment to help his son’s hearing. Kasinath’s growth milestones have beens slow – he started walking only at the age of four. He is the eldest child in the family, he has a baby brother who is one years old. Currently, he needs a surgery known as SAM resection (his second cardiac surgery) which costs approximately Rs 2 Lakhs. His father is unable to pay for his son’s treatment this time as he has previous loans to repay – together Genesis Foundation is determined to raise funds to take this financial burden off Kasinath’s family and give him a chance to live a healthy, happy life.

Baby of Sumathi

Baby of Sumathi, two days old from Chennai, is suffering from an Obstructed Total Anomalous Pulmonary Venous Connection (TAPVC), a heart disorder and urgently requires surgical correction. In this specific condition, the Pulmonary Veins from the lungs terminate at the right chamber of the heart instead of the left. A dangerous result of this causes mixing of pure and impure blood and low saturation. The surgery conducted at Miot Hospital, in Chennai is the only life saving measure to save this little baby’s life. Father – Periyaswamy, is a worker in a textile shop and earns Rs 5000 per month with which it’s impossible to afford treatment. We are committed in financially supporting this case.

Mohammed Arib Abdul Haee Shaikh

Mohammed Arib Abdul Hai Sheikh, six years from Mumbai has been suffering from a heart disorder – an Atrial Septal Defect which requires surgical closure, in this case at Reliance H N Hospital. He studies in Class I and has two siblings. His father Abdul Hai Sheikh works in a dye factory and earns Rs 4000 per month. Since his son’s diagnosis – they have been left helpless as they cannot afford surgery. We at Genesis Foundation were approached to financially support this case – which we are committed in doing.

Vasigaran

Vasigaran is three years old and the second child born to Silambarasan and Kalairasai. They belong to Cuddalore district in Tamil Nadu. He was born with a complex heart problem, Tetralogy of Fallot with multiple MAPCAS and severe Pulmonary Stenosis (narrowing of Pulmonary Valve). Vasigaran was kept at the government hospital for 15 days when doctors noticed that he was turning blue, had breathing problems and difficulty in taking feed. Both parents were naturally heartbroken to know that their son had been diagnosed with a heart disorder. They ran from hospital to hospital, in search for answers. Everywhere they went the same consensus was made – surgery was the only option to save the child. Silambarasan works hard as a farmer and brings home Rs 5000 per month, the cost of surgery was in no way anything he could afford. As a parent one can imagine how stuck they may have felt, as their son’s health was deteriorating and they couldn’t figure out how to come up with the funds required to save him. Vasigaran couldn’t speak anymore and wasn’t even in a position where he could walk. The parents took him to an outreach program that was being conducted in Cuddalore itself by doctors from Miot Hospital. The family were asked to bring him to Chennai for a more detailed examination. With great difficulty, they managed to reach and a clear diagnosis was made along with the prescribed surgery – an Angiography followed by Total Correction with insertion of a conduit from the right ventricule to the pulmonary valve. With the support from our CSR partner, WPP India CSR Foundation we have been able to support Vasigaran’s surgery.

Little Hareem

Little Hareem, is two years old and lives in Aligarh, Uttar Pradesh with her parents. She was born with a congenital heart disorder where a hole in the upper chamber of the heart was detected, this is known as an Arterial Septal Defect (ASD) there is also a leakage in the Mitral Valve. She needs an open heart surgery to close the hole and repair the Mitral Valve. Her father Israr is a tractor driver and earns a monthly income of Rs 4000, with which he supports his wife Noor and elder daughter who is six years old. They understandably struggle managing finances in the house, and have been unable to meet the costs required to save their daughters life. That’s where we can step in with your support to save each little heart, one by one.